So Kaytlin has now lost knowing what a horse is. She can no longer point one out or tell you that it is a horse when she sees it. This is so frustrating. I guess God was just giving me a break for those 3 weeks of her not losing anything. We got the full report today from her psychologist, hopefully we will get an OT out here that will come and see her. We also have our EEG tomorrow. Please keep us in your prayers.

 

God Bless all of you for thinking of us!

 

PS Please keep Garrett and his family in your prayers. He was born Jan 07 and has been diagnosed with a serious cancer.

Diagnosis

I spoke with Kaytlin's psychologist today and she has been given a provisional diagnosis of autism to be re-evaluated at the age of 3. Because children can change so much at this stage they do not want to make it permanent without knowing for sure. I am thankful for at least the provisional to be able to get her some help with SSI and the Medicaid waiver. She is also wanting to see if the occupational therapy will have more of an effect with Kaytlin's sensory disorder. It may be that if we can tackle the sensory then she would be able to learn and retain more.

 

Last night Kaytlin woke up in a screaming fit dazed and confused again. Her speech therapist was curious if her ability to retain and her success would go down once she was no longer sick, and it has. She was put on antibiotics Saturday and Monday started the journey to confusion again. I guess when children are sick they are more relaxed and able to retain more. Go figure that being sick can actually be a good thing in children with disabilities.

 

Well I guess this is all for now. For those that are keeping us in your prayers it is greatly appreciated. I think because we have known of the possibility of this diagnosis we are not shell shocked. No matter what label she has, she is always going to be my little princess with an attitude lol.

Yesterday Kayt had a few confusion episodes. After speaking with her speech therapist today we went and spoke with Kaytlin's pediatrician to find out about possible seizures. They are going to schedule an EEG and that way we can see if that is what is going on.

The episodes: Yesterday morning she was sitting at the table with me and asked for some juice, I answered saying Please, and she just stared at me blankly. Usually she will say please if we prompt her to. I did that 2x and still nothing so I said okay we can try it later, I didn't want her to get too upset about it. I went to hand her the juice and she forcefully pushed it away and then broke down crying.

The second episode occurred while her developmental therapist was here. We were in the middle of play therapy on the ground and Kaytlin just got very confused in the middle of play. She started looking around and called me Patia (the girl I babysit) and then called her therapist mommy and then started pointing at her room saying Patia. Then like nothing she snapped out of it and went back to being where we were and doing her therapy. During this session she also forgot what a cow was. She called a dog a cow and could not point out the cow in the book.

Just a quick update. Kayt has had a very rough couple of days. She isn't feeling too well at all. She has had a fever off and on today and yesterday. She is very very fussy. Being held is mostly what she wants. She is very disoriented a lot today. Will update later.

Kayt had therapy today, it went nicely. Her attention span is definitely getting shorter lol. More evidence that she is becoming that wonderful 2 yr old that I knew was hiding inside! I cannot wait to see the results of the deep pressure therapy. Her weighted lap pad isn't going over that well, she really doesn't like having blankets on period. HOWEVER I did put it on Robbie one night and he didn't think he could get up! It only weight 1 1/2lbs so it is very light. He laid there and cried instead of standing up in his crib crying, which helped him to fall back asleep faster! I wish I would have known about this oh 6 months ago when I was dying for sleep lol.

Friday afternoon turned into a 3 hour breakdown! Yes you read that right, 3 HOURS!! It sucked, she would be okay for about 2 minutes and then come back to me just losing it again. Ugh kids lol.

Saturday went great. We had the best shopping trip we have ever had with the kids! Both of them did wonderful and didn't fuss at all the whole time. It was a diff type of kids cart though, so I think that was it, they were side by side and facing forward.

Sunday went great also, she went into the preschool class with the bigger kids for about 80% of the time, the rest she had come back into the nursery with her dad and myself.

Okay she had a breakdown yesterday, last night to be more accurate. It has been a while since we had any and it has been pretty nice. I mean we have had the usual 2 yr old tantrums, but none of the breakdowns anywhere similar to the previous video. This one was quite a bit worse than the video. I had to hold her tight with her arms locked down in my arms and rock her. It worked wonderfully! She even took one arm out to wipe her nose and then put it right back in my arms to be pinned down.

Today she had her occupational therapy evaluation. She actually broke down in front of the therapist too. I learned a lot about different ways to apply deep pressure for her, which is what she is needing. Unfortunately there is no OT's that specialize in SPD to come out here and help us, but we are hoping for at least once a month at the least. The sensory issues that Kaytlin has may very well be the reason behind her delays. It was explained as her brain is trying to make sure she is okay and because it takes so much longer to process that her brain isn't able to concentrate on the other things to learn and retain them. At least we have more of a start now than before. She also told me a few ways to try to help Kayt with going out to eat and also with the noises that really bother her. I hope it works. The suggestion is to introduce her to headphones and let her listen to music so that she is concentrating on that and not the outside noises and commotion. This would be awesome if it works!