I forgot to post about how Kayts afternoon went after hippo therapy. On the way home she was very quiet, but alert so I figured she ws just taking everything in. She got home and was fussy and then decided to fall off my bed and bust her mouth open, which she only whimpered. She had no clue it was really hurt till i started getting all the blood off. It was a deep gash. She ate and went dow for a nap about 230 and they were easy to convinvemself.
She was really drawn away from us and just really calm sensory seaking but not knowing what it is she needsPart of me is saun that a large wow factor i ther e When we pulled ijto the drivewau to kknow we might b

I have no idea what i was thinkingughh ambian has gotten me again ;( Goodnightlovely ladies.. I will learn how to sew and get a nice machine, th eproblem being dot letting mu imagination go ogerboard or i would desgn allof kayts clores llol okay spelling is getting bad, nust get in ned.. beob has baby duty fo rthe first 4 houjra I take it.. Yea time is tickem My main point taht Kaytl was very qhiney, over tired, wanted to sleep all day, didn't want to eat. went down for bed at 9 with no fuss

As hard as this is to ask, and as much as I have wanted to avoid this I am going to put a donate button on this page and anything that is sent I will send you an email or something showing what it went to. We now have to drive 1 hr each way to Kaytlin's occupational therapy every week and we have to drive 20 min each way to her speech therapy on a diff day. I need so much for her as she is getting older and I just don't know where I am supposed to get all this money to do all these things. I have no idea how moms have done it before and will do it after. I am so overwhelmed with all the expenses that there is no help for. We just miss qualifying for food stamps and luckily the kids are on medicaid. There is no way for me to work, I tried working on weekends only and of course kaytlin had a really hard time with me being gone so much. I did it for almost 3 months, and it didn't get better, her attitude got worse and she became more violent with her brother. I dont mind working somewhere on weekends since I have to take her to so much during the week plus the other 2 therapies that come to our house that there is no way to work all week.

Sorry about the babbling I am soooo overwhelmed with all these things it isn't even funny. Anyway if you can help it is greatly appreciated and will only be used for things Kayt needs and gas to and from appointments. I give my word it will not be used for anything else. I know there are a lot of scams out there, but I can promise you this is not one.

Okay I have someone working with me on getting the blanket done for Kayt. We are having issues with finding Barney material. I just want to make sure it is one that she will want and warm up to.

Keep praying for Garrett also please.. Big hugs Katie

What I need to do/get

I decided I need to make a list of what i need to get for Kayt. She will be going into preschool soon (developmental) and since we are a paycheck to paycheck family like oh 80% of america lol, I need to make a list and find things for as cheap as I can. If anyone finds any of these things for a reasonable price let me know! If you have one or some of the items and want to donate them to Kaytlin that would be great too. Just send me a message and I will email you our home address.

We need to get a weighted blanket to help with her sleeping issues. I have the lap pad, and she does snuggle it at night, but once winter gets here I am guessing we may be able to leave a weighted blanket on her and she will hopefully sleep better and not wake up freaked out.

Medical ID bracelett that indicates that she has autism with our cel #'s on it. She likes to get away from us.

Shoe ID tags.

weighted vest

sensory toys

trampoline that has the closures so she wont get hurt. Anything jumping, swinging, and spinning keeps my girl happy as a clam :)

Any other suggestions or ideas let me know!!

Okay are you guys ready for this?? I am just re-posting what I posted on My mommy time

Okay so she meets all the requirements to have an actual diagnosis of autism and not PDD-NOS which is a milder form of Autism (at least that's how I understand it). Her new doctor which is a developmental ped wants to wait one more year before putting the actual diagnosis on her paperwork so that "if" and that is a big "if" she does change for the better in the next year it won't be a miss diagnosis. I like that! It sucks in a way here though because I didn't think it would be actual Autism, but more of PDD-NOS. The doctor said she noticed the speech right away, wow, really lol.. Most docs don't, she is on it. Kaytlin showed everything while we were there, including getting scared of the paper towel machine. Sooo anyway we had to give like 6 vials of blood! They are doing genetic and MANY other things just to rule out anything medical in order to focus all on autism. My girl did so good today considering. She also gave a pee sample . You guys I don't think everything has set in, even after all this time. The doc did tell me it was nice speaking to a mom that was so well educated on it all That made me feel very good about that. She said that on top of the developmental pre-school she wants Kayt to be in other things also. Just please pray we get the SSI soon because finances suck big time, and working didn't work at all. Kayt got worse when I was working on weekends. Anyway so there we have it, my kid has autism. hmmm nope don't like the sound of it. Okay I will quit rambling. TTYL..

Okay wow, I got some very exciting news today. So if anyone knows me they know that my sister and I have gone through some rough spots in our friendship with each other. Well we started talking the other day again after about 3 years. Well after seeing her kids with mine we both started to realize that Kaytlin and her daughter Ashley are just about exactly alike. They both have the same tendencies and hard time understanding and learning things. This is huge for me, I was so excited to see that this is in our family and I have someone else to relate to everything, and that someone else is my sister! How awesome is that?? So anyway as soon as my sister leaves today my phone rings. I picked it up and it was the developmental pediatrics at Riley Hospital. They are the ones that were going to do Kaytlin's medical evaluation. Well they said that the doctor could not see Kaytlin on December 9th because that doctor will not be there. They asked if we would be willing to change her appointment to tomorrow! Well, of course I would be willing!! Are you kidding, I just found out that things are not in my head and this is hereditary on my side of the family. Some people may think I am strange for being happy about this, but I have gone through a lot of self doubt. God is soooo good. I was so excited and just couldn't believe that this may be the end to all of the questioning. It is not a coinsidence for these things to fall one thing after another like this. All I could do was thank God and be soooo excited! Keep us n your prayers tomorrow, her appointment is at 10am and her phsycologist will be meeting us there.

Oh my goodness these night time freaking out episodes only seem to be coming more and more frequent. When I read about night terrors, it seems that it is similar, aside from the fact that she is coherent when we get to her, she is usually sitting up in the corner of her bed freaking out and either runs to me when I open the door or throws her arms around me and is still trying to catch her breath after she is back asleep. Rob (my hubby) got to witness it first hand last night. I was in the other room and when I came out she was asleep in his arms trying to catch her breath. It is so heartbreaking, especially when you hear that first scream. It is like straight out of a horror show. My sleep time at night seems to be getting shorter and shorter. Been up since 3am with the kids again. Okay I am done, just wanted to write down what happened last night.